[NEohioPAL]Fwd: Email our Senators before April 1st!
TRADLTTG at aol.com
TRADLTTG at aol.com
Thu Mar 29 07:58:26 PDT 2007
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Dear Friends,
=20
I have two beautiful, loving nephews named Michael & Nicholas. Michael is=
=20
6 and Nicholas has just turned 5. They are happy, fun loving, energetic=20
little boys. Michael loves to sing and play the drums while accompanied by=
his=20
best friend, guitar playing brother Nicholas. Their favorite singer is Bar=
ry=20
Manilow and their favorite chef is Emeril. They attend school in Bedford,=20
Ohio where they have many friends & helpers. Both boys have Fragile X. =20
=20
Please help me, help them by gaining support and funding for this very =20
necessary and important research. I know it is short notice, but if you ca=
n find=20
the time, please read the following email and submit the provided letter to=
=20
your Senators. You need only fill in the name & address information to mak=
e a=20
difference. The rest will be done for you. If you do not have time to rea=
d=20
all of the information, simply scroll down to ACT NOW and click on it. The=
=20
address form will appear and you will be done in less than 2 minutes. If y=
ou=20
have just a few more seconds, I urge you to forward this to everyone you=20
know to help us gain the support we need.
=20
Thank You for you time and friendship.
=20
Dawn Lafferty
=20
=20
Sent: Wednesday, March 28, 2007 1:37 PM =20
=20
Subject: Email our Senators before April 1st!
Hi Everyone!
Just received this urgent message from the National Fragile X Foundation=20
that we
need to write to our senators and urge them to support Fragile X research &=
=20
resources legislation -- the
details are below.
If you have any questions, feel free to call or email me back.
Thanks so much for your help on this! I have to help my little guys out=20
every way I can.
Kelly Gosiewski
-------- Original Message -------- Subject: OHIO advocates- we need=20
your help! Date: Wed, 28 Mar 2007 08:10:52 -0400 From: Jeffrey Cohen=20
_<j.cohen at fragilex.org>_ (mailto:j.cohen at fragilex.org>) To: =20
<Undisclosed-Recipient:;>
OHIO advocates- we need your help!
So far only 15 advocates from Ohio have written in. Other states are alread=
y=20
over 100 and we've delivered over 1800 emails and letters to the Senate in=20
the last three days.=20
=20
But only 15 from Ohio.
=20
Please help. Write in yourself and forward this to everyone you can think o=
f=20
from your address books. The whole process only takes 2 minutes.
=20
Thanks!
=20
Jeffrey
********
To: All NFXF Advocates, Members and Friends=20
From: National Fragile X Foundation Public Policy Committee=20
Date: March 20, 2007=20
RE: URGENT Action Needed: Please contact your Senators=20
(we must act before April 1st) =20
=20
On National Fragile X Foundation Advocacy Day February 27th and 28th, nearl=
y=20
100 advocates from more than 26 states traveled to Washington to raise=20
awareness and attention to the need for increased funding and resources for=
=20
Fragile X. NOW YOU CAN JOIN IN THIS EFFORT. Please help us to build on the=
se=20
efforts by taking just a few moments to e-mail your Senators today in suppo=
rt of=20
this year's requests.=20
As in recent years, federal funds are again tight and Congress is=20
increasingly strained to deliver additional funding to Fragile X research.=20=
As a=20
result, it is even more important than ever that Members of Congress hear f=
rom you,=20
as constituents and as advocates. Nothing motivates a Member of Congress=20
more than hearing directly from YOU! =20
We are asking Congress to include provisions specific to Fragile X funding=20
in the Fiscal Year 2008 Labor, Health and Human Services appropriations=20
legislation, which funds the National Institutes of Health (NIH), Centers f=
or=20
Disease Control and Prevention (CDC) and Health Resources and Services=20
Administration (HRSA). This year, our main requests are that Congress:=20
1) Provide an additional $3 million to the CDC to support the agency's=20
current public health initiative focused on Fragile X, and devote additiona=
l=20
funding to explore and pursue other CDC priorities including the creation o=
f a=20
National Fragile X Registry that would impact the Fragile X community;=20
2) Include report language requesting that the NIH enhance its efforts=20
across its Institutes related to Fragile X syndrome, Fragile X-associated t=
remor=20
ataxia syndrome (FXTAS) and Fragile X-associated Premature Ovarian Failure=20
(POF); and=20
3) Provide $5 million for the SPRANS initiative within HRSA to strengthen=20
states=E2=80=99 heritable disorders newborn screening programs.=20
How It Works=20
To make it easier for other Members of Congress to support the requests to=20
the Appropriations Subcommittee, Senators Debbie Stabenow (D-MI) and Chuck =20
Hagel (R-NE) are once again circulating a letter to the Labor, Health and H=
uman=20
Services, and Education Appropriations Subcommittee with the requests for =20
Fragile X funding provisions, that other Members of Congress can sign onto.=
=20
Members of Congress have until April 1st to join this letter. We are asking=
you=20
to e-mail your Senators to encourage them to add their name to these letter=
s=20
before it is sent to the Senate Subcommittee. The more support we solidify=
, =20
the more powerful we will be in moving the Appropriations Subcommittee to =20
support our requests with respect to the NIH, CDC, and HRSA. Increasing the=20
signatories to this letter is the single most important request we will mak=
e of=20
you this year. Please take the time to follow the simple steps below. =20
This request is quick and simple. From start to finish, this request shoul=
d=20
take less than 2 minutes of your time. If you have already responded to a=
=20
previous alert, please take action again=E2=80=94persistent action will lea=
d to =20
success.
Please make the time this week =E2=80=93 today if you can=E2=80=93 to person=
alize our draft=20
e-mail to your Senators asking them to sign onto the Hagel/ Stabenow Senate=
=20
letter to the Appropriations Subcommittee in support of increased funding f=
or=20
Fragile X. (If your Senator is an Appropriator =E2=80=93 which will be ide=
ntified=20
by our e-mail system =E2=80=93 you will be sending a letter asking for thei=
r support=20
of these requests when the letter comes before their committee). =20
Just click on the following link and follow the simple instructions to=20
generate all of these emails. The process should take no more than a coupl=
e of=20
minutes and will make a big difference. =20
_ACT NOW_ (http://63.66.87.48/cweb4/index.cfm?orgcode=3Dnfxf&hotissue=3D10)=20=
=20
(Click on the linked words =E2=80=9Cact now=E2=80=9D)=20
In case the link doesn't work copy and paste this into your browser window:=
=20
_http://63.66.87.48/cweb4/index.cfm?orgcode=3Dnfxf&hotissue=3D10_=20
(http://63.66.87.48/cweb4/index.cfm?orgcode=3Dnfxf&hotissue=3D10) =20
If you have any questions or need assistance in completing these letters,=20
please do not hesitate to contact: =20
Leah Howard at _lmhoward at bakerd.com_ (mailto:lmhoward at bakerd.com) or=20
202-589-2806=20
THANK YOU for taking the time to help. We have the attention of Congress a=
s=20
we never have before =E2=80=93 and it's because of you. =20
***P.S. Please forward this email to family, friends and colleagues that ca=
n=20
join the effort. Please go through your address book and forward this email=
=20
to as many as you can. No matter where they live in the U.S. our system wi=
ll=20
select and deliver the right letters to their Senators.=20
If you live in PENNSYLVANIA or IOWA this is particularly important! We nee=
d=20
to maximize the number of letters to Senators from these two states so=20
please forward this to all contacts in your address book.=20
Thank you.=20
Jeffrey Cohen=20
Chair, Public Policy=20
National Fragile X Foundation
************************************** See what's free at http://www.aol.com=
.
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face=3DArial color=3D#000000 size=3D2>
<DIV>Dear Friends,</DIV>
<DIV> </DIV>
<DIV>I have two beautiful, loving nephews named Michael &=20
Nicholas. Michael is 6 and Nicholas has just turned 5. They are=20
happy, fun loving, energetic little boys. Michael loves to sing and pl=
ay=20
the drums while accompanied by his best friend, guitar playing brother=20
Nicholas. Their favorite singer is Barry Manilow and their favorite ch=
ef=20
is Emeril. They attend school in Bedford, Ohio where they have many=20
friends & helpers. Both boys have Fragile X. </DIV>
<DIV> </DIV>
<DIV>Please help me, help them by gaining support and funding for this very=20
necessary and important research. I know it is short notice, but if yo=
u=20
can find the time, please read the following email and submit the provi=
ded=20
letter to your Senators. You need only fill in the name & address=20
information to make a difference. The rest will be done for=20
you. If you do not have time to read all of the information,=
=20
simply scroll down to ACT NOW and click on it. The address form w=
ill=20
appear and you will be done in less than 2 minutes. If you=20
have just a few more seconds, I urge you to forward this to=20
everyone you know to help us gain the support we need.</DIV>
<DIV> </DIV>
<DIV>Thank You for you time and friendship.</DIV>
<DIV> </DIV>
<DIV>Dawn Lafferty</DIV>
<DIV> </DIV>
<DIV> </DIV>
<DIV><STRONG>Sent:</STRONG> Wednesday, March 28, 2007 1:37 PM=20
<DIV style=3D"FONT: 10pt arial">
<DIV><B>Subject:</B> Email our Senators before April 1st!</DIV></DIV>
<DIV><BR></DIV>Hi Everyone!<BR>Just received this urgent message from the=20
National Fragile X Foundation that we<BR>need to write to our senators and u=
rge=20
them to support Fragile X research & resources legislation -- the<BR>det=
ails=20
are below.<BR><BR>If you have any questions, feel free to call or email me=20
back.<BR><BR>Thanks so much for your help on this! I have to help my=20
little guys out every way I can.<BR><BR>Kelly Gosiewski<BR><BR>-------- Orig=
inal=20
Message --------=20
<TABLE cellSpacing=3D0 cellPadding=3D0 border=3D0>
<TBODY>
<TR>
<TH vAlign=3Dbaseline noWrap align=3Dright>Subject: </TH>
<TD>OHIO advocates- we need your help!</TD></TR>
<TR>
<TH vAlign=3Dbaseline noWrap align=3Dright>Date: </TH>
<TD>Wed, 28 Mar 2007 08:10:52 -0400</TD></TR>
<TR>
<TH vAlign=3Dbaseline noWrap align=3Dright>From: </TH>
<TD>Jeffrey Cohen <A class=3Dmoz-txt-link-rfc2396E=20
title=3D"mailto:j.cohen at fragilex.org>"=20
href=3D"mailto:j.cohen at fragilex.org>"><j.cohen at fragilex.org></A>=
</TD></TR>
<TR>
<TH vAlign=3Dbaseline noWrap align=3Dright>To: </TH>
<TD><Undisclosed-Recipient:;></TD></TR></TBODY></TABLE><BR><BR>
<META content=3D"MSHTML 6.00.6000.16414" name=3DGENERATOR>
<STYLE></STYLE>
<DIV>OHIO advocates- we need your help!</DIV>
<DIV><BR></DIV>
<DIV><FONT size=3D2>So far only 15 advocates from Ohio have writte=
n in.=20
Other states are already over 100 and we've delivered over 1800 emails and=20
letters to the Senate in the last three days. </FONT></DIV>
<DIV><FONT size=3D2></FONT> </DIV>
<DIV><FONT size=3D2>But only 15 from Ohio.</FONT></DIV>
<DIV><FONT size=3D2></FONT> </DIV>
<DIV><FONT size=3D2>Please help. Write in yourself and forward this to every=
one=20
you can think of from your address books. The whole process only takes 2=20
minutes.</FONT></DIV>
<DIV><FONT size=3D2></FONT> </DIV>
<DIV><FONT size=3D2>Thanks!</FONT></DIV>
<DIV><FONT size=3D2></FONT> </DIV>
<DIV><FONT size=3D2>Jeffrey</FONT></DIV>
<DIV><FONT size=3D2></FONT><BR></DIV>
<DIV><FONT size=3D2>********<BR></FONT></DIV>
<DIV>
<P class=3DMsoNormal style=3D"MARGIN: 0pt; TEXT-ALIGN: center"=20
align=3Dcenter><O:P><FONT size=3D2><FONT face=3D"Times New Roman"=20
size=3D3></FONT></FONT></O:P></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><FONT size=3D3>=
<FONT=20
face=3D"Times New Roman">To:<SPAN> =
=20
</SPAN>All NFXF Advocates, Members and=20
Friends<O:P></O:P></FONT></FONT></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><O:P><FONT=20
face=3D"Times New Roman" size=3D3></FONT></O:P></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><FONT size=3D3>=
<FONT=20
face=3D"Times New Roman">From:=20
<SPAN> &nbs=
p;=20
</SPAN>National Fragile X Foundation Public Policy=20
Committee<O:P></O:P></FONT></FONT></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><O:P><FONT=20
face=3D"Times New Roman" size=3D3></FONT></O:P></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><B>Date:<SPAN> &=
nbsp; =20
</SPAN></B><ST1:DATE year=3D"2007" day=3D"20" month=3D"3"><B>March 20,=20
2007</B></ST1:DATE><B><O:P></O:P></B></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><O:P><FONT=20
face=3D"Times New Roman" size=3D3></FONT></O:P></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><FONT size=3D3>=
<FONT=20
face=3D"Times New Roman">RE:<SPAN> =
=20
</SPAN>URGENT Action Needed: Please contact your=20
Senators<O:P></O:P></FONT></FONT></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><STRONG><SPAN> &=
nbsp;  =
; =20
</SPAN><EM>(</EM><SPAN style=3D"FONT-VARIANT: small-caps"><EM>we must act be=
fore=20
April 1<SUP>st</SUP>)</EM><SPAN> =20
</SPAN><O:P></O:P></SPAN></STRONG></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><O:P><FONT=20
face=3D"Times New Roman" size=3D3></FONT></O:P></B></FONT></P>
<DIV=20
style=3D"BORDER-RIGHT: medium none; PADDING-RIGHT: 0pt; BORDER-TOP: medium n=
one; PADDING-LEFT: 0pt; PADDING-BOTTOM: 1pt; BORDER-LEFT: medium none; PADDI=
NG-TOP: 0pt; BORDER-BOTTOM: windowtext 1pt solid">
<P class=3DMsoNormal=20
style=3D"BORDER-RIGHT: medium none; PADDING-RIGHT: 0pt; BORDER-TOP: medium n=
one; PADDING-LEFT: 0pt; PADDING-BOTTOM: 0pt; MARGIN: 0pt; BORDER-LEFT: mediu=
m none; PADDING-TOP: 0pt; BORDER-BOTTOM: medium none"><O:P><FONT=20
size=3D2><FONT face=3D"Times New Roman" size=3D3></FONT></FONT></O:P></P></D=
IV>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><O:P><FONT size=3D2><FONT=20
face=3D"Times New Roman" size=3D3> </FONT></FONT></O:P><FONT size=3D2><=
FONT=20
face=3D"Times New Roman" size=3D3>On National Fragile X Foundation Advocacy=20=
Day=20
February 27<SUP>th</SUP> and 28<SUP>th</SUP>, nearly 100 advocates from more=
=20
than 26 states traveled to Washington to raise awareness and attention to th=
e=20
need for increased funding and resources for Fragile X. <SPAN> </SPAN>N=
OW=20
YOU CAN JOIN IN THIS EFFORT. Please help us to build on these efforts by tak=
ing=20
just a few moments to e-mail your Senators <U>today</U> in support of this=20
year's requests.</FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><O:P><FONT size=3D2><FONT=20
face=3D"Times New Roman" size=3D3></FONT></FONT></O:P></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman">As in recent years, federal funds are again tight a=
nd=20
Congress is increasingly strained to deliver additional funding to Fragile X=
=20
research.<SPAN> </SPAN>As a result, <U>it is even more important than=20=
ever=20
that Members of Congress hear from you</U>, as constituents and as=20
advocates.<SPAN> </SPAN>Nothing motivates a Member of Congress more th=
an=20
hearing directly from <B>YOU</B>!<SPAN> </SPAN></FONT></FONT></FONT></=
P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><O:P><FONT size=3D2><FONT=20
face=3D"Times New Roman" size=3D3></FONT></FONT></O:P></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman">We are asking Congress to include provisions specif=
ic to=20
Fragile X funding in the Fiscal Year 2008 Labor, Health and Human Services=20
appropriations legislation, which funds the National Institutes of Health (N=
IH),=20
Centers for Disease Control and Prevention (CDC) and Health Resources and=20
Services Administration (HRSA).<SPAN> </SPAN>This year, our main reque=
sts=20
are that Congress:<SPAN=20
style=3D"COLOR: black"><O:P></O:P></SPAN></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><SPAN style=3D"COLOR: black"><O:P=
><FONT=20
size=3D2><FONT face=3D"Times New Roman" size=3D3></FONT></FONT></O:P></SPAN>=
</P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt 0pt 0pt 48pt"><SPAN=20
style=3D"COLOR: black"><FONT size=3D2><FONT size=3D3><FONT face=3D"Times New=
Roman">1)=20
Provide an additional $3 million to the CDC to support the agency's current=20
public health initiative focused on Fragile X, and devote additional funding=
to=20
explore and pursue other CDC priorities including the creation of a National=
=20
Fragile X Registry that would impact the Fragile X=20
community;<O:P></O:P></FONT></FONT></FONT></SPAN></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><SPAN style=3D"COLOR: black"><O:P=
><FONT=20
size=3D2><FONT face=3D"Times New Roman" size=3D3></FONT></FONT></O:P></SPAN>=
</P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt 0pt 0pt 48pt"><FONT size=3D2><FONT=
=20
face=3D"Times New Roman"><SPAN style=3D"COLOR: black"><FONT size=3D3>2) Incl=
ude report=20
language requesting that the NIH</FONT></SPAN><SPAN=20
style=3D"FONT-SIZE: 11pt; COLOR: black"> </SPAN><SPAN style=3D"COLOR: black"=
><FONT=20
size=3D3>enhance its efforts across its Institutes related to Fragile X synd=
rome,=20
Fragile X-associated tremor ataxia syndrome (FXTAS) and Fragile X-associated=
=20
Premature Ovarian Failure (POF); and<O:P></O:P></FONT></SPAN></FONT></FONT><=
/P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><SPAN style=3D"COLOR: black"><O:P=
><FONT=20
size=3D2><FONT face=3D"Times New Roman" size=3D3></FONT></FONT></O:P></SPAN>=
</P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt 0pt 0pt 48pt"><FONT size=3D2><FONT=
=20
size=3D3><FONT face=3D"Times New Roman"><SPAN style=3D"COLOR: black">3) Prov=
ide $5=20
million for the SPRANS initiative within HRSA to strengthen states=E2=80=99=20=
heritable=20
disorders newborn screening programs.</SPAN><O:P></O:P></FONT></FONT></FONT>=
</P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><O:P><FONT=20
face=3D"Times New Roman" size=3D3></FONT></O:P></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><SPAN=20
style=3D"TEXT-TRANSFORM: uppercase"><FONT size=3D3><FONT face=3D"Times New R=
oman">How=20
It Works<O:P></O:P></FONT></FONT></SPAN></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><O:P><FONT size=3D2><FONT=20
face=3D"Times New Roman" size=3D3></FONT></FONT></O:P></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT face=3D"Time=
s New Roman"=20
size=3D3>To make it easier for other Members of Congress to support the requ=
ests=20
to the Appropriations Subcommittee, <B>Senators Debbie Stabenow (D-MI) and C=
huck=20
Hagel (R-NE) </B>are once again circulating a letter to the Labor, Health an=
d=20
Human Services, and Education Appropriations Subcommittee with the requests=20=
for=20
Fragile X funding provisions, that other Members of Congress can sign=20
onto.<SPAN> </SPAN>Members of Congress have until April 1<SUP>st</SUP>=
to=20
join this letter. <EM><B>We are asking you to e-mail your Senators to encour=
age=20
them to add their name to these letters before it is sent to the Senate=20
Subcommittee.</B></EM><B> </B><SPAN> </SPAN>The more support we solidif=
y,=20
the more powerful we will be in moving the Appropriations Subcommittee to=20
support our requests with respect to the NIH, CDC, and HRSA. <FONT=20
face=3DArial><SPAN><FONT color=3D#ff0000><STRONG>Increasing the signatories=20=
to this=20
letter is the single most important request we will make of you this=20
year.<SPAN> </SPAN><I>Please take the time to follow the simple steps=20
below</I>.</STRONG></FONT> <SPAN> </SPAN></SPAN></FONT></FONT></FO=
NT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT face=3D"Time=
s New Roman"=20
size=3D3><FONT face=3DArial><SPAN><SPAN></SPAN></SPAN></FONT><SPAN><O:P><FON=
T=20
size=3D3></FONT></O:P></SPAN></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0in 0in 0pt"><SPAN><FONT size=3D2><FON=
T=20
face=3D"Times New Roman" size=3D3><FONT size=3D3>This request is quick and=20
simple.<SPAN> </SPAN><STRONG>From start to finish, this request should=
=20
take less than 2 minutes of your time.</STRONG><SPAN> </SPAN>If y=
ou=20
have already responded to a previous alert, please take action=20
again=E2=80=94</FONT><I><FONT size=3D3>persistent action will lead to=20
success.<BR><O:P></O:P></FONT></I></FONT></FONT></SPAN></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT face=3D"Time=
s New Roman"=20
size=3D3></FONT></FONT> </P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><STRONG>Please make the time this week</STRONG> <ST=
RONG>=E2=80=93=20
</STRONG><EM><B><U>today if you can</U></B></EM><STRONG>=E2=80=93 to persona=
lize our=20
draft e-mail to your Senators asking them to sign onto the Hagel/=20
Stabenow Senate letter to the Appropriations Subcommittee in support of=20
increased funding for Fragile X.<SPAN> </SPAN>(If your Senator is an=20
Appropriator =E2=80=93 which will be identified by our e-mail system =E2=80=
=93 you will be=20
sending a letter asking for their support of these requests when the letter=20
comes before their committee). </STRONG></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><STRONG></STRONG></FONT></FONT></FONT> </P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><STRONG>Just click on the following link and follow=
the=20
simple instructions to generate all of these emails. <SPAN> </SPAN>The=20
process should take no more than a couple of minutes and will make a big=20
difference. <O:P></O:P></STRONG></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><STRONG><O:P><FONT=
=20
face=3D"Times New Roman" size=3D3></FONT></O:P></STRONG></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><SPAN><FONT size=3D2><FONT=20
face=3D"Times New Roman" size=3D3><STRONG> </STRONG></FONT></FONT></SPA=
N><FONT=20
size=3D2><A title=3Dhttp://63.66.87.48/cweb4/index.cfm?orgcode=3Dnfxf&ho=
tissue=3D10=20
href=3D"http://63.66.87.48/cweb4/index.cfm?orgcode=3Dnfxf&hotissue=3D10"=
><SPAN=20
style=3D"FONT-WEIGHT: normal"><FONT face=3D"Times New Roman" color=3D#ff0000=
=20
size=3D3><STRONG>ACT NOW</STRONG></FONT></SPAN></A><FONT face=3D"Times New R=
oman"=20
size=3D3><STRONG> <SPAN> </SPAN>(Click on the linked words =E2=80=9Cact=
=20
now=E2=80=9D)</STRONG></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><STRONG><FONT=20
face=3D"Times New Roman" size=3D3>In case the link doesn't work copy and pas=
te this=20
into your browser window:</FONT></STRONG></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><A=20
title=3Dhttp://63.66.87.48/cweb4/index.cfm?orgcode=3Dnfxf&hotissue=3D10=20
href=3D"http://63.66.87.48/cweb4/index.cfm?orgcode=3Dnfxf&hotissue=3D10"=
>http://63.66.87.48/cweb4/index.cfm?orgcode=3Dnfxf&hotissue=3D10</A></FO=
NT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><U><SPAN><O:P><=
SPAN=20
style=3D"TEXT-DECORATION: none"><FONT face=3D"Times New Roman"=20
size=3D3></FONT></SPAN></O:P></SPAN></U></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"></FONT></FONT></FONT> </P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><B><I><SPAN>If you have any questions or need assis=
tance=20
in completing these letters, please do not hesitate to contact:<SPAN> =20
</SPAN></SPAN></I></B></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><B><I><SPAN><SPAN></SPAN></SPAN></I></B><SPAN>Leah=20=
Howard=20
at <A title=3Dmailto:lmhoward at bakerd.com=20
href=3D"mailto:lmhoward at bakerd.com">lmhoward at bakerd.com</A> or </S=
PAN></FONT></FONT><FONT=20
size=3D3><FONT=20
face=3D"Times New Roman"><SPAN>202-589-2806<O:P></O:P></SPAN></FONT></FONT><=
/FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><O:P><FONT size=3D2><FONT=20
face=3D"Times New Roman" size=3D3></FONT></FONT></O:P></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><B><SPAN>THANK YOU for taking the time to=20
help.<SPAN> </SPAN>We have the attention of Congress as we never=20=
have=20
before =E2=80=93 and it's because of you.<SPAN> =20
</SPAN></SPAN></B><SPAN><O:P></O:P></SPAN></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><SPAN><FONT size=3D2><FONT size=
=3D3><FONT=20
face=3D"Times New Roman"><O:P></O:P></FONT></FONT></FONT></SPAN></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><SPAN>***P.S. <B>Please forward this email</B> to f=
amily,=20
friends and colleagues that can join the effort. Please go through your addr=
ess=20
book and forward this email to as many as you can. No matter where they live=
in=20
the=20
</SPAN><ST1:COUNTRY-REGION><ST1:PLACE><SPAN>U.S.</SPAN></ST1:PLACE></ST1:COU=
NTRY-REGION><SPAN>=20
our system will select and deliver the right letters to their=20
Senators.<O:P></O:P></SPAN></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><SPAN><O:P><FONT size=3D2><FONT=20
face=3D"Times New Roman" size=3D3></FONT></FONT></O:P></SPAN></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><FONT color=3D#ff0000><B><SPAN>If you live in=20
</SPAN></B><ST1:STATE><ST1:PLACE><B><SPAN>PENNSYLVANIA</SPAN></B></ST1:PLACE=
></ST1:STATE><B><SPAN>=20
or=20
</SPAN></B><ST1:STATE><ST1:PLACE><B><SPAN>IOWA</SPAN></B></ST1:PLACE></ST1:S=
TATE></FONT><B><SPAN>=20
this is particularly important!</SPAN></B><SPAN> We need to maximize the num=
ber=20
of letters to Senators from these two states so please forward this to all=20
contacts in your address book.</SPAN></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><SPAN></SPAN></FONT></FONT></FONT> </P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><SPAN>Thank you.</SPAN></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><SPAN></SPAN></FONT></FONT></FONT> </P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><SPAN>Jeffrey Cohen</SPAN></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><SPAN>Chair, Public=20
Policy</SPAN></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT=20
face=3D"Times New Roman"><SPAN>National Fragile X=20
Foundation</SPAN></FONT></FONT></FONT></P></DIV></DIV></FONT><BR><BR><BR><DI=
V><FONT style=3D"color: black; font: normal 10pt ARIAL, SAN-SERIF;"><HR styl=
e=3D"MARGIN-TOP: 10px">See what's free at <A title=3D"http://www.aol.com?nci=
d=3DAOLAOF00020000000503" href=3D"http://www.aol.com?ncid=3DAOLAOF0002000000=
0503" target=3D"_blank">AOL.com</A>. </FONT></DIV></BODY></HTML>
-------------------------------1175180306--
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Message-ID: <001101c77201$5bdde130$9902a8c0 at delllq041irw7q>
From: "Kelly Gosiewski" <gosiewskik at adelphia.net>
To: "Yvonne Appelzoller" <Yvonne.appelzoller at comcast.net>,
"Sandy Novak" <snovak710 at yahoo.com>,
"Patrick Lafferty" <patrick.lafferty at ey.com>,
"Mary Beth Vineyard" <mbvineyard at hotmail.com>,
"Mark Lafferty" <vonlavert at adelphia.net>,
"Lauren Blauser" <lauren_blauser at hotmail.com>,
"Kerry Boscarello" <kboscarello at bedford.k12.oh.us>,
"Keith Madison" <MADISON_K at ccbmrdd.org>,
"Kathi Fruscella" <kfruscella at adelphia.net>,
"Judy Gosiewski" <juddd123 at aol.com>,
"Jerri Williams" <jwilliams at bedford.k12.oh.us>,
"Elsie Tarczy" <etarczy at bedford.k12.oh.us>,
"Donna Forte" <dforte6 at yahoo.com>, "Dawn Lafferty" <TRADLTTG at aol.com>,
"Barb Holtz" <barb_holtz at hotmail.com>,
"Ann Marie Scapporotti" <ams831 at adelphia.net>,
" Matier" <matier at adelphia.net>
Subject: Fw: Email our Senators before April 1st!
Date: Thu, 29 Mar 2007 08:54:16 -0400
MIME-Version: 1.0
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X-AOL-IP: 68.168.78.77
------=_NextPart_000_000E_01C771DF.D484B0E0
Content-Type: text/plain;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Sent: Wednesday, March 28, 2007 1:37 PM
Subject: Email our Senators before April 1st!
Hi Everyone!
Just received this urgent message from the National Fragile X Foundation tha=
t we
need to write to our senators and urge them to support Fragile X research &=20=
resources legislation -- the
details are below.
If you have any questions, feel free to call or email me back.
Thanks so much for your help on this! I have to help my little guys out eve=
ry way I can.
Kelly Gosiewski
-------- Original Message -------- Subject: OHIO advocates- we need your he=
lp!=20
Date: Wed, 28 Mar 2007 08:10:52 -0400=20
From: Jeffrey Cohen <j.cohen at fragilex.org>=20
To: <Undisclosed-Recipient:;>=20
OHIO advocates- we need your help!
So far only 15 advocates from Ohio have written in. Other states are already=
over 100 and we've delivered over 1800 emails and letters to the Senate in=20=
the last three days.=20
But only 15 from Ohio.
Please help. Write in yourself and forward this to everyone you can think of=
from your address books. The whole process only takes 2 minutes.
Thanks!
Jeffrey
********
To: All NFXF Advocates, Members and Friends
From: National Fragile X Foundation Public Policy Committee
Date: March 20, 2007
RE: URGENT Action Needed: Please contact your Senators
(we must act before April 1st) =20
On National Fragile X Foundation Advocacy Day February 27th and 28th, nearl=
y 100 advocates from more than 26 states traveled to Washington to raise awa=
reness and attention to the need for increased funding and resources for Fra=
gile X. NOW YOU CAN JOIN IN THIS EFFORT. Please help us to build on these e=
fforts by taking just a few moments to e-mail your Senators today in support=
of this year's requests.
As in recent years, federal funds are again tight and Congress is increasing=
ly strained to deliver additional funding to Fragile X research. As a resul=
t, it is even more important than ever that Members of Congress hear from yo=
u, as constituents and as advocates. Nothing motivates a Member of Congress=
more than hearing directly from YOU! =20
We are asking Congress to include provisions specific to Fragile X funding i=
n the Fiscal Year 2008 Labor, Health and Human Services appropriations legis=
lation, which funds the National Institutes of Health (NIH), Centers for Dis=
ease Control and Prevention (CDC) and Health Resources and Services Administ=
ration (HRSA). This year, our main requests are that Congress:
1) Provide an additional $3 million to the CDC to support the agency's curre=
nt public health initiative focused on Fragile X, and devote additional fund=
ing to explore and pursue other CDC priorities including the creation of a N=
ational Fragile X Registry that would impact the Fragile X community;
2) Include report language requesting that the NIH enhance its efforts acros=
s its Institutes related to Fragile X syndrome, Fragile X-associated tremor=20=
ataxia syndrome (FXTAS) and Fragile X-associated Premature Ovarian Failure (=
POF); and
3) Provide $5 million for the SPRANS initiative within HRSA to strengthen st=
ates' heritable disorders newborn screening programs.
How It Works
To make it easier for other Members of Congress to support the requests to t=
he Appropriations Subcommittee, Senators Debbie Stabenow (D-MI) and Chuck Ha=
gel (R-NE) are once again circulating a letter to the Labor, Health and Huma=
n Services, and Education Appropriations Subcommittee with the requests for=20=
Fragile X funding provisions, that other Members of Congress can sign onto.=20=
Members of Congress have until April 1st to join this letter. We are asking=
you to e-mail your Senators to encourage them to add their name to these le=
tters before it is sent to the Senate Subcommittee. The more support we sol=
idify, the more powerful we will be in moving the Appropriations Subcommitte=
e to support our requests with respect to the NIH, CDC, and HRSA. Increasing=
the signatories to this letter is the single most important request we will=
make of you this year. Please take the time to follow the simple steps bel=
ow. =20
This request is quick and simple. From start to finish, this request should=
take less than 2 minutes of your time. If you have already responded to a=20=
previous alert, please take action again-persistent action will lead to succ=
ess.
Please make the time this week - today if you can- to personalize our draft=20=
e-mail to your Senators asking them to sign onto the Hagel/ Stabenow Senate=20=
letter to the Appropriations Subcommittee in support of increased funding fo=
r Fragile X. (If your Senator is an Appropriator - which will be identified=
by our e-mail system - you will be sending a letter asking for their suppor=
t of these requests when the letter comes before their committee).=20
Just click on the following link and follow the simple instructions to gener=
ate all of these emails. The process should take no more than a couple of m=
inutes and will make a big difference.=20
ACT NOW (Click on the linked words "act now")
In case the link doesn't work copy and paste this into your browser window:
http://63.66.87.48/cweb4/index.cfm?orgcode=3Dnfxf&hotissue=3D10
If you have any questions or need assistance in completing these letters, pl=
ease do not hesitate to contact: =20
Leah Howard at lmhoward at bakerd.com or 202-589-2806
THANK YOU for taking the time to help. We have the attention of Congress as=
we never have before - and it's because of you. =20
***P.S. Please forward this email to family, friends and colleagues that can=
join the effort. Please go through your address book and forward this email=
to as many as you can. No matter where they live in the U.S. our system wil=
l select and deliver the right letters to their Senators.
If you live in PENNSYLVANIA or IOWA this is particularly important! We need=20=
to maximize the number of letters to Senators from these two states so pleas=
e forward this to all contacts in your address book.
Thank you.
Jeffrey Cohen
Chair, Public Policy
National Fragile X Foundation
------=_NextPart_000_000E_01C771DF.D484B0E0
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charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
<!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
<HTML><HEAD><TITLE></TITLE>
<META http-equiv=3DContent-Type content=3Dtext/html;charset=3DISO-8859-1>
<META content=3D"MSHTML 6.00.6000.16414" name=3DGENERATOR></HEAD>
<BODY text=3D#000000 bgColor=3D#ffffff>
<DIV><FONT face=3DArial size=3D2> </FONT><B>Sent:</B> Wednesday, March=20=
28, 2007=20
1:37 PM</DIV>
<DIV style=3D"FONT: 10pt arial">
<DIV><B>Subject:</B> Email our Senators before April 1st!</DIV></DIV>
<DIV><BR></DIV>Hi Everyone!<BR>Just received this urgent message from the=20
National Fragile X Foundation that we<BR>need to write to our senators and u=
rge=20
them to support Fragile X research & resources legislation -- the<BR>det=
ails=20
are below.<BR><BR>If you have any questions, feel free to call or email me=20
back.<BR><BR>Thanks so much for your help on this! I have to help my=20
little guys out every way I can.<BR><BR>Kelly Gosiewski<BR><BR>-------- Orig=
inal=20
Message --------=20
<TABLE cellSpacing=3D0 cellPadding=3D0 border=3D0>
<TBODY>
<TR>
<TH vAlign=3Dbaseline noWrap align=3Dright>Subject: </TH>
<TD>OHIO advocates- we need your help!</TD></TR>
<TR>
<TH vAlign=3Dbaseline noWrap align=3Dright>Date: </TH>
<TD>Wed, 28 Mar 2007 08:10:52 -0400</TD></TR>
<TR>
<TH vAlign=3Dbaseline noWrap align=3Dright>From: </TH>
<TD>Jeffrey Cohen <A class=3Dmoz-txt-link-rfc2396E href=3D"mailt=
o:j.cohen at fragilex.org>"><j.cohen at fragilex.org></A></TD></TR>
<TR>
<TH vAlign=3Dbaseline noWrap align=3Dright>To: </TH>
<TD><Undisclosed-Recipient:;></TD></TR></TBODY></TABLE><BR><BR>
<META content=3D"MSHTML 6.00.6000.16414" name=3DGENERATOR>
<STYLE></STYLE>
<DIV>OHIO advocates- we need your help!</DIV>
<DIV><BR></DIV>
<DIV><FONT size=3D2>So far only 15 advocates from Ohio have writte=
n in.=20
Other states are already over 100 and we've delivered over 1800 emails and=20
letters to the Senate in the last three days. </FONT></DIV>
<DIV><FONT size=3D2></FONT> </DIV>
<DIV><FONT size=3D2>But only 15 from Ohio.</FONT></DIV>
<DIV><FONT size=3D2></FONT> </DIV>
<DIV><FONT size=3D2>Please help. Write in yourself and forward this to every=
one=20
you can think of from your address books. The whole process only takes 2=20
minutes.</FONT></DIV>
<DIV><FONT size=3D2></FONT> </DIV>
<DIV><FONT size=3D2>Thanks!</FONT></DIV>
<DIV><FONT size=3D2></FONT> </DIV>
<DIV><FONT size=3D2>Jeffrey</FONT></DIV>
<DIV><FONT size=3D2></FONT><BR></DIV>
<DIV><FONT size=3D2>********<BR></FONT></DIV>
<DIV>
<P class=3DMsoNormal style=3D"MARGIN: 0pt; TEXT-ALIGN: center" align=3Dcen=
ter><O:P><FONT size=3D2><FONT face=3D"Times New Roman" size=3D3></FONT></F=
ONT></O:P></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><FONT size=3D3>=
<FONT face=3D"Times New Roman">To:<SPAN> &nbs=
p; =20
</SPAN>All NFXF Advocates, Members and=20
Friends<O:P></O:P></FONT></FONT></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><O:P><FONT fa=
ce=3D"Times New Roman" size=3D3></FONT></O:P></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><FONT size=3D3>=
<FONT face=3D"Times New Roman">From:=20
<SPAN> &nbs=
p;=20
</SPAN>National Fragile X Foundation Public Policy=20
Committee<O:P></O:P></FONT></FONT></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><O:P><FONT fa=
ce=3D"Times New Roman" size=3D3></FONT></O:P></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><B>Date:<SPAN> &n=
bsp; =20
</SPAN></B><ST1:DATE year=3D"2007" day=3D"20" month=3D"3"><B>March 20,=20
2007</B></ST1:DATE><B><O:P></O:P></B></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><O:P><FONT fa=
ce=3D"Times New Roman" size=3D3></FONT></O:P></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><FONT size=3D3>=
<FONT face=3D"Times New Roman">RE:<SPAN> &nbs=
p; =20
</SPAN>URGENT Action Needed: Please contact your=20
Senators<O:P></O:P></FONT></FONT></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><STRONG><SPAN> &n=
bsp; =
=20
</SPAN><EM>(</EM><SPAN style=3D"FONT-VARIANT: small-caps"><EM>we must act be=
fore=20
April 1<SUP>st</SUP>)</EM><SPAN> =20
</SPAN><O:P></O:P></SPAN></STRONG></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><O:P><FONT fa=
ce=3D"Times New Roman" size=3D3></FONT></O:P></B></FONT></P>
<DIV style=3D"BORDER-RIGHT: medium none; PADDING-RIGHT: 0pt; BORDER-TOP: m=
edium none; PADDING-LEFT: 0pt; PADDING-BOTTOM: 1pt; BORDER-LEFT: medium none=
; PADDING-TOP: 0pt; BORDER-BOTTOM: windowtext 1pt solid">
<P class=3DMsoNormal style=3D"BORDER-RIGHT: medium none; PADDING-RIGHT: 0p=
t; BORDER-TOP: medium none; PADDING-LEFT: 0pt; PADDING-BOTTOM: 0pt; MARGIN:=20=
0pt; BORDER-LEFT: medium none; PADDING-TOP: 0pt; BORDER-BOTTOM: medium none"=
><O:P><FONT size=3D2><FONT face=3D"Times New Roman" size=3D3></FONT></FONT=
></O:P></P></DIV>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><O:P><FONT size=3D2><FONT face=
=3D"Times New Roman" size=3D3> </FONT></FONT></O:P><FONT size=3D2><FONT=
face=3D"Times New Roman" size=3D3>On National Fragile X Foundation Advoca=
cy Day=20
February 27<SUP>th</SUP> and 28<SUP>th</SUP>, nearly 100 advocates from more=
=20
than 26 states traveled to Washington to raise awareness and attention to th=
e=20
need for increased funding and resources for Fragile X. <SPAN> </SPAN>N=
OW=20
YOU CAN JOIN IN THIS EFFORT. Please help us to build on these efforts by tak=
ing=20
just a few moments to e-mail your Senators <U>today</U> in support of this=20
year's requests.</FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><O:P><FONT size=3D2><FONT face=
=3D"Times New Roman" size=3D3></FONT></FONT></O:P></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman">As in recent years, federal funds are again ti=
ght and=20
Congress is increasingly strained to deliver additional funding to Fragile X=
=20
research.<SPAN> </SPAN>As a result, <U>it is even more important than=20=
ever=20
that Members of Congress hear from you</U>, as constituents and as=20
advocates.<SPAN> </SPAN>Nothing motivates a Member of Congress more th=
an=20
hearing directly from <B>YOU</B>!<SPAN> </SPAN></FONT></FONT></FONT></=
P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><O:P><FONT size=3D2><FONT face=
=3D"Times New Roman" size=3D3></FONT></FONT></O:P></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman">We are asking Congress to include provisions s=
pecific to=20
Fragile X funding in the Fiscal Year 2008 Labor, Health and Human Services=20
appropriations legislation, which funds the National Institutes of Health (N=
IH),=20
Centers for Disease Control and Prevention (CDC) and Health Resources and=20
Services Administration (HRSA).<SPAN> </SPAN>This year, our main reque=
sts=20
are that Congress:<SPAN style=3D"COLOR: black"><O:P></O:P></SPAN></FONT></=
FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><SPAN style=3D"COLOR: black"><O:P=
><FONT size=3D2><FONT face=3D"Times New Roman" size=3D3></FONT></FONT></O:=
P></SPAN></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt 0pt 0pt 48pt"><SPAN style=3D"COL=
OR: black"><FONT size=3D2><FONT size=3D3><FONT face=3D"Times New Roman">1)=20
Provide an additional $3 million to the CDC to support the agency's current=20
public health initiative focused on Fragile X, and devote additional funding=
to=20
explore and pursue other CDC priorities including the creation of a National=
=20
Fragile X Registry that would impact the Fragile X=20
community;<O:P></O:P></FONT></FONT></FONT></SPAN></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><SPAN style=3D"COLOR: black"><O:P=
><FONT size=3D2><FONT face=3D"Times New Roman" size=3D3></FONT></FONT></O:=
P></SPAN></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt 0pt 0pt 48pt"><FONT size=3D2><FONT=
face=3D"Times New Roman"><SPAN style=3D"COLOR: black"><FONT size=3D3>2) I=
nclude report=20
language requesting that the NIH</FONT></SPAN><SPAN style=3D"FONT-SIZE: 11=
pt; COLOR: black"> </SPAN><SPAN style=3D"COLOR: black"><FONT size=3D3>enha=
nce its efforts across its Institutes related to Fragile X syndrome,=20
Fragile X-associated tremor ataxia syndrome (FXTAS) and Fragile X-associated=
=20
Premature Ovarian Failure (POF); and<O:P></O:P></FONT></SPAN></FONT></FONT><=
/P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><SPAN style=3D"COLOR: black"><O:P=
><FONT size=3D2><FONT face=3D"Times New Roman" size=3D3></FONT></FONT></O:=
P></SPAN></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt 0pt 0pt 48pt"><FONT size=3D2><FONT=
size=3D3><FONT face=3D"Times New Roman"><SPAN style=3D"COLOR: black">3) P=
rovide $5=20
million for the SPRANS initiative within HRSA to strengthen states=92 herita=
ble=20
disorders newborn screening programs.</SPAN><O:P></O:P></FONT></FONT></FONT>=
</P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><O:P><FONT fa=
ce=3D"Times New Roman" size=3D3></FONT></O:P></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><SPAN style=
=3D"TEXT-TRANSFORM: uppercase"><FONT size=3D3><FONT face=3D"Times New Roman"=
>How=20
It Works<O:P></O:P></FONT></FONT></SPAN></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><O:P><FONT size=3D2><FONT face=
=3D"Times New Roman" size=3D3></FONT></FONT></O:P></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT face=3D"Time=
s New Roman" size=3D3>To make it easier for other Members of Congress to s=
upport the requests=20
to the Appropriations Subcommittee, <B>Senators Debbie Stabenow (D-MI) and C=
huck=20
Hagel (R-NE) </B>are once again circulating a letter to the Labor, Health an=
d=20
Human Services, and Education Appropriations Subcommittee with the requests=20=
for=20
Fragile X funding provisions, that other Members of Congress can sign=20
onto.<SPAN> </SPAN>Members of Congress have until April 1<SUP>st</SUP>=
to=20
join this letter. <EM><B>We are asking you to e-mail your Senators to encour=
age=20
them to add their name to these letters before it is sent to the Senate=20
Subcommittee.</B></EM><B> </B><SPAN> </SPAN>The more support we solidif=
y,=20
the more powerful we will be in moving the Appropriations Subcommittee to=20
support our requests with respect to the NIH, CDC, and HRSA. <FONT face=
=3DArial><SPAN><FONT color=3D#ff0000><STRONG>Increasing the signatories to t=
his=20
letter is the single most important request we will make of you this=20
year.<SPAN> </SPAN><I>Please take the time to follow the simple steps=20
below</I>.</STRONG></FONT> <SPAN> </SPAN></SPAN></FONT></FONT></FO=
NT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT face=3D"Time=
s New Roman" size=3D3><FONT face=3DArial><SPAN><SPAN></SPAN></SPAN></FONT>=
<SPAN><O:P><FONT size=3D3></FONT></O:P></SPAN></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0in 0in 0pt"><SPAN><FONT size=3D2><FON=
T face=3D"Times New Roman" size=3D3><FONT size=3D3>This request is quick a=
nd=20
simple.<SPAN> </SPAN><STRONG>From start to finish, this request should=
=20
take less than 2 minutes of your time.</STRONG><SPAN> </SPAN>If y=
ou=20
have already responded to a previous alert, please take action=20
again=97</FONT><I><FONT size=3D3>persistent action will lead to=20
success.<BR><O:P></O:P></FONT></I></FONT></FONT></SPAN></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT face=3D"Time=
s New Roman" size=3D3></FONT></FONT> </P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><STRONG>Please make the time this week</STRONG=
> <STRONG>=96=20
</STRONG><EM><B><U>today if you can</U></B></EM><STRONG>=96 to personalize o=
ur=20
draft e-mail to your Senators asking them to sign onto the Hagel/=20
Stabenow Senate letter to the Appropriations Subcommittee in support of=20
increased funding for Fragile X.<SPAN> </SPAN>(If your Senator is an=20
Appropriator =96 which will be identified by our e-mail system =96 you will=20=
be=20
sending a letter asking for their support of these requests when the letter=20
comes before their committee). </STRONG></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><STRONG></STRONG></FONT></FONT></FONT> </=
P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><STRONG>Just click on the following link and f=
ollow the=20
simple instructions to generate all of these emails. <SPAN> </SPAN>The=20
process should take no more than a couple of minutes and will make a big=20
difference. <O:P></O:P></STRONG></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><STRONG><O:P><FONT=
face=3D"Times New Roman" size=3D3></FONT></O:P></STRONG></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><SPAN><FONT size=3D2><FONT face=
=3D"Times New Roman" size=3D3><STRONG> </STRONG></FONT></FONT></SPAN><F=
ONT size=3D2><A href=3D"http://63.66.87.48/cweb4/index.cfm?orgcode=3Dnfx=
f&hotissue=3D10"><SPAN style=3D"FONT-WEIGHT: normal"><FONT face=3D"Tim=
es New Roman" color=3D#ff0000 size=3D3><STRONG>ACT NOW</STRONG></FONT></SP=
AN></A><FONT face=3D"Times New Roman" size=3D3><STRONG> <SPAN> </SPAN=
>(Click on the linked words =93act=20
now=94)</STRONG></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><STRONG><FONT fa=
ce=3D"Times New Roman" size=3D3>In case the link doesn't work copy and paste=
this=20
into your browser window:</FONT></STRONG></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><A href=3D"http:=
//63.66.87.48/cweb4/index.cfm?orgcode=3Dnfxf&hotissue=3D10">http://63.66=
.87.48/cweb4/index.cfm?orgcode=3Dnfxf&hotissue=3D10</A></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><B><U><SPAN><O:P><=
SPAN style=3D"TEXT-DECORATION: none"><FONT face=3D"Times New Roman" size=
=3D3></FONT></SPAN></O:P></SPAN></U></B></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"></FONT></FONT></FONT> </P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><B><I><SPAN>If you have any questions or need=20=
assistance=20
in completing these letters, please do not hesitate to contact:<SPAN> =20
</SPAN></SPAN></I></B></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><B><I><SPAN><SPAN></SPAN></SPAN></I></B><SPAN>=
Leah Howard=20
at <A href=3D"mailto:lmhoward at bakerd.com">lmhoward at bakerd.com</A> or&=
nbsp;</SPAN></FONT></FONT><FONT size=3D3><FONT face=3D"Times New Roman">=
<SPAN>202-589-2806<O:P></O:P></SPAN></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><O:P><FONT size=3D2><FONT face=
=3D"Times New Roman" size=3D3></FONT></FONT></O:P></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><B><SPAN>THANK YOU for taking the time to=20
help.<SPAN> </SPAN>We have the attention of Congress as we never=20=
have=20
before =96 and it's because of you.<SPAN> =20
</SPAN></SPAN></B><SPAN><O:P></O:P></SPAN></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><SPAN><FONT size=3D2><FONT size=
=3D3><FONT face=3D"Times New Roman"><O:P></O:P></FONT></FONT></FONT></SPAN=
></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><SPAN>***P.S. <B>Please forward this email</B>=
to family,=20
friends and colleagues that can join the effort. Please go through your addr=
ess=20
book and forward this email to as many as you can. No matter where they live=
in=20
the=20
</SPAN><ST1:COUNTRY-REGION><ST1:PLACE><SPAN>U.S.</SPAN></ST1:PLACE></ST1:COU=
NTRY-REGION><SPAN>=20
our system will select and deliver the right letters to their=20
Senators.<O:P></O:P></SPAN></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><SPAN><O:P><FONT size=3D2><FONT =20=
face=3D"Times New Roman" size=3D3></FONT></FONT></O:P></SPAN></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><FONT color=3D#ff0000><B><SPAN>If you live in=20
</SPAN></B><ST1:STATE><ST1:PLACE><B><SPAN>PENNSYLVANIA</SPAN></B></ST1:PLACE=
></ST1:STATE><B><SPAN>=20
or=20
</SPAN></B><ST1:STATE><ST1:PLACE><B><SPAN>IOWA</SPAN></B></ST1:PLACE></ST1:S=
TATE></FONT><B><SPAN>=20
this is particularly important!</SPAN></B><SPAN> We need to maximize the num=
ber=20
of letters to Senators from these two states so please forward this to all=20
contacts in your address book.</SPAN></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><SPAN></SPAN></FONT></FONT></FONT> </P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><SPAN>Thank you.</SPAN></FONT></FONT></FONT></=
P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><SPAN></SPAN></FONT></FONT></FONT> </P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><SPAN>Jeffrey Cohen</SPAN></FONT></FONT></FONT=
></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><SPAN>Chair, Public=20
Policy</SPAN></FONT></FONT></FONT></P>
<P class=3DMsoNormal style=3D"MARGIN: 0pt"><FONT size=3D2><FONT size=3D3><FO=
NT face=3D"Times New Roman"><SPAN>National Fragile X=20
Foundation</SPAN></FONT></FONT></FONT></P></DIV></BODY></HTML>
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